Courage, compassion, and connection: evaluation of an Indigenous-led health services research project in Labrador

Abstract

A qualitative evaluation was conducted for the health services research project entitled Courage, Compassion, and Connection—The Journey to Healing: Exploring Cancer Pre-diagnosis for Indigenous Peoples in Labrador. The principle aim of the evaluation was to use the learnings from this Indigenous-led cancer care research project to make recommendations to inform and enhance future health services research with/in Labrador’s Indigenous communities. The Courage, Compassion, and Connection project is an important example of self-determination in health research, which the literature supports as integral to improving Indigenous health outcomes and equity. The present study used decolonizing research methodology consisting of a blend of Western and Indigenous evaluation approaches. Reflexive thematic analysis of data relating to project administration, community engagement, knowledge mobilization, and participant experience resulted in eight main themes. These were linked to five overarching recommendations (and specific sub-recommendations): (1) Ensure the project timeline allows for meaningful community engagement, (2) Focus on building strong relationships, (3) Develop an understanding of why community members may or may not engage in research, (4) Draw on community connections, knowledge, and experience, and (5) Prioritize accountability to the communities involved. Finally, the evaluation is also used to make a case for sufficient and sustainable funding for Indigenous-led health research in Canada.