Development of a learning resource for intellectual and developmental disabilities in long term care

Abstract

Background: The number of residents admitted to long term care (LTC) with a diagnosis of an intellectual and/or developmental disability (IDD) is increasing since this population is aging and have a variety of complex health care needs. Although LTC offers a variety of benefits for this population, there are many issues associated with having a diagnosis of an IDD. As well, many of the resources available are dementia specific and not specific to those with IDDs. Purpose: The purpose of this practicum project was to develop a learning resource that would educate staff at St. Luke's Home (SLH) regarding IDDs within LTC. Methods: 1) comprehensive literature review; 2) consultations with key health care professionals via semi-structured interviews and email; and 3) development of a resource. Results: Issues identified included complex health needs, dementia, challenging behaviors, antipsychotic use, inclusivity, social isolation and loneliness, communication, resident-focused care, the importance of including family/friends, feelings/beliefs of staff, and teamwork. The importance of documentation was also highlighted. Based on the findings from the literature review and consultations, a learning resource was developed. The resource consists of four booklets that encompass the variety of issues associated with caring for residents with IDDs: 1) IDDs in LTC, 2) challenging behaviors, 3) dementia and IDDs, and 4) social isolation and loneliness. A self-evaluation component was included throughout each booklet, such as “test your knowledge” questions, case-studies, and self-reflection activities. Conclusion: This learning resource may be used by a variety of health care professionals who work with or are interested in learning more about IDDs in LTC.